Alzheimer's Disease Memoirs

Alzheimer's Disease Memoirs
Author: Pramod K Nayar
Publisher: Springer Nature
Total Pages: 160
Release: 2021-12-06
Genre: Literary Criticism
ISBN: 981166112X

This book examines writings by people living with Alzheimer's Disease and their caregivers. Its focus areas include the construction of the self in the face of diminishing linguistic and cognitive abilities, the stigmatization of ageing, the various narrative strategies that these texts (often collaborative) employ, the health activism and advocacy generated via a 'biosociality,' and the ethics of care. It examines the 'disease writing' genre about a condition that ravages the ability to use language. It serves as a "literary" examination of the work done in this area through a critical reading of the memoirs of those with AD and caregivers and a healthy dose of literary theory. The book is a valuable resource for those interested in literary and critical theory and researchers in the field of ageing/dementia studies.

Come Back Early Today

Come Back Early Today
Author: Marie Marley
Publisher:
Total Pages: 260
Release: 2011
Genre: Alzheimer's disease
ISBN: 9780983570615

"'In the world of Alzheimer's memoirs, a rarity-- not, strictly speaking, a 'happy ending,' but a different tale from the usual bleak, grinding, downward spiral into unalloyed misery'"--Cover p. 4.

UnMasking Alzheimer's: The Memories Behind the Masks

UnMasking Alzheimer's: The Memories Behind the Masks
Author: Cynthia Huling Hummel
Publisher: Lulu.com
Total Pages: 98
Release: 2017-09-03
Genre: Art
ISBN: 1387202189

"UnMasking Alzheimer's: The Memories Behind the Masks" is a collection of photographs of the thirty-six masks created by Alzheimer's advocate and artist, Cynthia Huling Hummel along with her reflections on the challenges and hopes of living well with an AD diagnosis.

The Gene Guillotine

The Gene Guillotine
Author: Kate Preskenis
Publisher:
Total Pages: 306
Release: 2012-07-01
Genre: Adult children
ISBN: 9780983294801

"Early-onset Alzheimer's disease caused by a rare genetic mutation struck 5 of Kate's family members, beginning with her grandmother at age 39 .... Through the crystal ball of genetics, Kate can find out her future, but does she want to know?" -- P. [4] of cover.

The Poetics and Politics of Alzheimer’s Disease Life-Writing

The Poetics and Politics of Alzheimer’s Disease Life-Writing
Author: Martina Zimmermann
Publisher: Springer
Total Pages: 172
Release: 2017-06-07
Genre: Literary Criticism
ISBN: 3319443887

This book is open access under a CC BY 4.0 license. This is the first book-length exploration of the thoughts and experiences expressed by dementia patients in published narratives over the last thirty years. It contrasts third-person caregiver and first-person patient accounts from different languages and a range of media, focusing on the poetical and political questions these narratives raise: what images do narrators appropriate; what narrative plot do they adapt; and how do they draw on established strategies of life-writing. It also analyses how these accounts engage with the culturally dominant Alzheimer’s narrative that centres on dependence and vulnerability, and addresses how they relate to discourses of gender and aging. Linking literary scholarship to the medico-scientific understanding of dementia as a neurodegenerative condition, this book argues that, first, patients’ articulations must be made central to dementia discourse; and second, committed alleviation of caregiver burden through social support systems and altered healthcare policies requires significantly altered views about aging, dementia, and Alzheimer’s patients.

Memoirs of a Caregiver

Memoirs of a Caregiver
Author: Cynthia Young
Publisher: iUniverse
Total Pages: 220
Release: 2013-01-31
Genre: Family & Relationships
ISBN: 1475970994

Alzheimers is a memory-robbing, debilitating disease that affects millions of Americans. For most families, having just one member afflicted with Alzheimers disease can be devastating. In her poignant memoir, Cynthia Young shares her story of love and devotion as she learns how to care for four family members stricken with Alzheimers disease over a ten-year period. Young narrates a journey filled with laughter, challenges, and sorrow as she commutes from California to Michigan to care for her mother, two aunts, and a cousin. She provides insight into how the disease progresses and gradually destroys the memory and abilities to learn, reason, make sound judgments, communicate, and carry out daily activities. While sharing her personal story and detailing how she overcame each obstacle along the way, Young also teaches other caregivers how to use valuable resources, navigate the court system as a guardian and conservator, handle the Alzheimers personality, and search for an assisted-living facility. Memoirs of a Caregiver shares one womans inspiring story of unconditional love and courage with the hope that it will encourage and empower other caregivers to be diligent, strong, and, most importantly, to never give up. A portion of the proceeds from this book will be directed to the Alzheimers Association.

Alzheimer’s Disease in Contemporary U.S. Fiction

Alzheimer’s Disease in Contemporary U.S. Fiction
Author: Cristina Garrigós
Publisher: Routledge
Total Pages: 205
Release: 2021-07-28
Genre: Literary Criticism
ISBN: 1000410625

This volume seeks to bring readers to a deeper understanding of contemporary cultural and social configurations of Alzheimer’s disease by analyzing 21st-century U.S. novels in which the disease plays a key narrative role. Via analysis of selected works, Garrigós considers how the erasure of memory in a person with Alzheimer’s affects our idea of the identity of that person and their sense of belonging to a group. Starting out from three different types of memory (individual, social and cultural), the study focuses on the narrative strategies that authors use to configure how the disease is perceived and represented. This study is significant not only because of what the texts reveal about those with Alzheimer’s, but also for what they say about us - about the authors and readers who are producing and consuming these texts, about how we see this disease, and what our attitudes to it say about contemporary U.S. society.

Contemporary Narratives of Dementia

Contemporary Narratives of Dementia
Author: Sarah Falcus
Publisher: Routledge
Total Pages: 361
Release: 2019-01-15
Genre: Literary Criticism
ISBN: 1317208234

This book examines narratives of dementia in contemporary literary texts, studying what is now a pressing issue with deep political, economic, and social implications for many ageing societies. As part of the increasing visibility of dementia in social and cultural life, these narratives pose ethical, aesthetic, and political questions about subjectivity, agency, and care that help us to interrogate the cultural discourse of dementia. Contemporary Narratives of Dementia is a seminal book that offers a sustained examination of a wide range of literary narratives, from auto/biographies and detective fiction, to children’s books and comic books. With its wide-reaching theoretical and critical scope, its comparative dimension, and its inclusion of multiple genres, this book is important for scholars engaging with studies of dementia and ageing in diverse disciplines. Sarah Falcus is a Reader in Contemporary Literature at the University of Huddersfield, UK. She has research interests in contemporary women’s writing, feminism and literary gerontology. She is the co-director of the Dementia and Cultural Narrative (DCN) network. Katsura Sako is an Associate Professor of English, at Keio University, Japan. Her main field of research is in post-war/contemporary British literature, and she has particular interests in gender, ageing and illness. She is a member of the steering committee of the DCN network.

Somebody I Used to Know

Somebody I Used to Know
Author: Wendy Mitchell
Publisher: Ballantine Books
Total Pages: 219
Release: 2018-06-05
Genre: Biography & Autobiography
ISBN: 1524797928

“A brave and illuminating journey inside the mind, heart, and life of a person with early-onset Alzheimer’s disease.”—Lisa Genova, author of Still Alice Wendy Mitchell had a busy job with the British National Health Service, raised her two daughters alone, and spent her weekends running and climbing mountains. Then, slowly, a mist settled deep inside the mind she once knew so well, blurring the world around her. She didn’t know it then, but dementia was starting to take hold. In 2014, at age fifty-eight, she was diagnosed with young-onset Alzheimer’s. In this groundbreaking book, Mitchell shares the heartrending story of her cognitive decline and how she has fought to stave it off. What lay ahead of her after the diagnosis was scary and unknowable, but Mitchell was determined and resourceful, and she vowed to outwit the disease for as long as she could. As Mitchell learned to embrace her new life, she began to see her condition as a gift, a chance to experience the world with fresh eyes and to find her own way to make a difference. Even now, her sunny outlook persists: She devotes her time to educating doctors, caregivers, and other people living with dementia, helping to reduce the stigma surrounding this insidious disease. Still living independently, Mitchell now uses Post-it notes and technology to remind her of her routines and has created a “memory room” where she displays photos—with labels—of her daughters, friends, and special places. It is a room where she feels calm and happy, especially on days when the mist descends. A chronicle of one woman’s struggle to make sense of her shifting world and her mortality, Somebody I Used to Know offers a powerful rumination on memory, perception, and the simple pleasure of living in the moment. Philosophical, poetic, intensely personal, and ultimately hopeful, this moving memoir is both a tribute to the woman Wendy Mitchell used to be and a brave affirmation of the woman she has become. Praise for Somebody I Used to Know “Remarkable . . . Mitchell gives such clear-eyed insight that anyone who knows a person living with dementia should read this book.”—The Times (London) “A landmark book . . . The best reward for [Mitchell’s] courage and candour would surely be fundamental changes in the way people with dementia are treated by society.”—Financial Times