Dementia Together

Dementia Together
Author: Pati Bielak-Smith
Publisher: PuddleDancer Press
Total Pages: 252
Release: 2020-01-01
Genre: Family & Relationships
ISBN: 1934336246

Dementia is an illness that causes no physical pain. But just ask anyone who cares about someone with Alzheimer's or another dementia if their heart isn't aching. The pain in dementia comes from feeling hopeless, alone, or disconnected from loved ones—but a broken relationship can be healed. This book is for family members and friends, for spouses, caregivers, and those who simply care. It outlines a path to a life with dementia that includes more life and less illness. With imagination, compassion, empathy, and quiet humor, the real-life stories in Dementia Together show you how to build a healthy dementia relationship. Because there are ways to communicate that result in greater capacity to receive as well as to provide both warm connection and practical collaboration. Living with dementia gives everyone an opportunity to grow their hearts bigger. This book shows you how.

Caring for a Loved One with Dementia

Caring for a Loved One with Dementia
Author: Marguerite Manteau-Rao
Publisher: New Harbinger Publications
Total Pages: 181
Release: 2016-02-02
Genre: Family & Relationships
ISBN: 1626251592

If you’re caring for a loved one with dementia, you know firsthand the challenge of providing care while maintaining your own well-being. Caring for a Loved One with Dementia offers a compassionate and effective mindfulness-based dementia care (MBDC) guide to help you reduce stress, stay balanced, and bring ease into your interactions with the person with dementia. In this book, you’ll learn how to approach caring with calm, centered presence; respond to your loved one with compassion; and maintain authentic communication, even in the absence of words. Most importantly, you’ll discover ways to manage the grief, anger, depression, and other emotions often associated with dementia care, so you can find strength and meaning in each moment you spend with your loved one.

Reclaiming Joy Together

Reclaiming Joy Together
Author: Lawson Bryan
Publisher:
Total Pages: 238
Release: 2020-06-02
Genre:
ISBN:

There is a friendship revolution happening in dementia care across the country. Since the birth of the Respite Ministry in 2012 at a southern church in Montgomery, Alabama, their outreach to friends and neighbors living with dementia has been innovative and all welcoming. Originally a faith-born ministry, Respite's place in the community and now the world has been an open-arms embrace--a great welcoming to friends, neighbors, and strangers of any ethnicity or faith who are living with dementia of any variety. Respite is mainly staffed with volunteers. Director Daphne Johnston calls these volunteers the forerunners in dementia care the force that drives this friendship revolution. "In the Respite care environment everyone is a volunteer. Everyone needs help. Everyone is needy because he or she needs to either receive help or give help." Daphne Johnston knows that "Volunteers make a Respite community thrive in any locale. It is an adaptable model that can be tailored to your community and fit your resources and gifts. This book Reclaiming Joy Together is the current summary of what we at Respite have learned, become, and it explains our vision for the future. The model is now replicated in 17 other Respite programs with modifications for their own local neighborhood. Different names are chosen by each community, but the core values of volunteer Respite are all guided by one driving purpose: to come alongside others who need the help of neighbors and new friends." Daphne Johnston explains how this friendship revolution began: "My boss at the time and mentor Bishop Lawson Bryan asked me to create a business plan to establish a faith community at our church. He felt that people who have been worshipping and fellowshipping in their home church shouldn't have to be excluded when they developed any illness or even dementia. The vision originated with and was inspired by Lawson Bryan, and with his guidance and encouragement, I just started asking people to help. They got on board in a big way." As a result of Respite's individual story, the global narrative of dementia care began to change. "When people first hear the diagnosis of dementia, Alzheimer's or Parkinson's, they brace for what they assume will become an overwhelming tsunami--a flood of worry and work that will overtake and erode all normalcy and subsume a quality of life that can never be had again. That doesn't have to be true," Daphne asserts. "The diagnosis of dementia is like other kinds of diagnoses that something is now wrong that needs to be tended. We simply need to provide a kind of care tailored to the needs of people with memory or reasoning impairment, which vary significantly depending upon the person." About Daphne Johnston: After serving in long-term care administration for 15 years, Daphne Johnston accepted the challenge in 2012 at the First United Methodist Church to develop the Respite Ministry for families affected by Alzheimer's in the tri-county area of Montgomery, Alabama. Since then, Daphne has helped to plant the volunteer-driven model in 17 different program sites in AL, FL, and GA. Her mission is to help individuals with dementia and their family members find purpose, dignity, and opportunity to serve their community while living with new life challenges. Daphne and her husband Frank make their home in Montgomery, Alabama and have two children: Bo and Kathleen. She is an avid reader and tennis player.

Dancing with Dementia

Dancing with Dementia
Author: Christine Bryden
Publisher: Jessica Kingsley Publishers
Total Pages: 204
Release: 2005
Genre: Health & Fitness
ISBN: 9781843103325

Christine Bryden was a top civil servant and single mother of three children when she was diagnosed with dementia at the age of 46. Dancing with Dementia is a vivid account of her experiences of living with dementia, exploring the effects of memory problems, loss of independence, difficulties in communication and the exhaustion of coping with simple tasks. She describes how, with the support of her husband Paul, she continues to lead an active life nevertheless, and explains how professionals and carers can help. This book is a thoughtful exploration of how dementia challenges our ideas of personal identity and of the process of self-discovery it can bring about.

Four Umbrellas

Four Umbrellas
Author: June Hutton
Publisher: Dundurn
Total Pages: 224
Release: 2020-10-17
Genre: Biography & Autobiography
ISBN: 145974781X

A writing couple searches for answers when Alzheimer's causes one of them to lose the place where stories come from — memory. At the age of fifty-three, Tony walks away from a life of journalism and into an unknown future. June is forty-eight, a writer and teacher, and over the following decade watches as her husband changes — in interests, goals, and behaviour — until Tony has a fall, ending the life they had known. A diagnosis is seven years away, yet the signs of Alzheimer’s are all around. A suitcase Tony packs for a trip is jammed with four umbrellas, a visual symbol of cognitive looping. But how far back do these signs go? The couple starts probing the past and finding answers. This is not an old person’s disease.

The Last Ocean

The Last Ocean
Author: Nicci Gerrard
Publisher: Penguin
Total Pages: 274
Release: 2020-08-11
Genre: Biography & Autobiography
ISBN: 0525521984

From the award-winning journalist and author, a lyrical, raw and humane investigation of dementia that explores both the journeys of the people who live with the condition and those of their loved ones After a diagnosis of dementia, Nicci Gerrard’s father, John, continued to live life on his own terms, alongside the disease. But when an isolating hospital stay precipitated a dramatic turn for the worse, Gerrard, an award-winning journalist and author, recognized that it was not just the disease, but misguided protocol and harmful practices that cause such pain at the end of life. Gerrard was inspired to seek a better course for all who suffer because of the disease. The Last Ocean is Gerrard’s investigation into what dementia does to both the person who lives with the condition and to their caregivers. Dementia is now one of the leading causes of death in the West, and this necessary book will offer both comfort and a map to those walking through it. While she begins with her father’s long slip into forgetting, Gerrard expands to examine dementia writ large. Gerrard gives raw but literary shape both to the unimaginable loss of one’s own faculties, as well as to the pain of their loved ones. Her lens is unflinching, but Gerrard honors her subjects and finds the beauty and the humanity in their seemingly diminished states. In so doing, she examines the philosophy of what it means to have a self, as well as how we can offer dignity and peace to those who suffer with this terrible disease. Not only will it aid those walking with dementia patients, The Last Ocean will prompt all of us to think on the nature of a life well lived.

My Grandma Has Dementia

My Grandma Has Dementia
Author: Alex Winstanley
Publisher: Andrews UK Limited
Total Pages: 34
Release: 2023-08-16
Genre: Juvenile Fiction
ISBN: 1837913471

This picture book aims to raise awareness of the impact that dementia can have on an individual and their family in a child-friendly and supportive way. It is aimed at 4-11 year olds and has been inspired and informed by people with lived experiences of dementia. Through rhyme and engaging illustrations this book hopes to start conversations about dementia, in order to help relieve anxieties that children might have about someone close to them who may be living with dementia. The MY HAS series of books aims to help children to understand a range of long-term health conditions whilst promoting an inclusive and diverse society.

When Your Loved One Has Dementia

When Your Loved One Has Dementia
Author: Joy A. Glenner
Publisher: JHU Press
Total Pages: 152
Release: 2005-06-17
Genre: Health & Fitness
ISBN: 0801898668

The result is a guide that integrates the practicalities of caregiving with the human emotions that accompany it.

The Family Experience of Dementia

The Family Experience of Dementia
Author: Gary Morris
Publisher: Jessica Kingsley Publishers
Total Pages: 322
Release: 2020-12-21
Genre: Health & Fitness
ISBN: 1784509833

Dementia not only affects the person presented with the diagnosis, but their family and friends too. This book provides practitioners with strategies to support the whole family and understand their dementia journey both pre- and post-diagnosis. This is facilitated through a series of activities and reflective prompts. There is also a dedicated chapter offering structured exercises for health and social care practitioners and students. The book introduces the Lawrence family, where Peter has been diagnosed with dementia, and provides perspectives from each family member, allowing practitioners to become acquainted with the lived experience of everyone involved. The reflective questions allow readers to become actively engaged to maximise their knowledge and understanding, and to better contextualize what the dementia experience feels like for family and friends. With its focus on the all-important lived experience of the whole family during the diagnostic process and beyond, this is essential reading for any practitioner working with people with dementia.