How to Break Bad News to People with Intellectual Disabilities

by Irene Tuffrey-Wijne

Author	: Irene Tuffrey-Wijne
Publisher	: Jessica Kingsley Publishers
Total Pages	: 194
Release	: 2012-09-15
Genre	: Social Science
ISBN	: 0857005839

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This book offers unique and flexible guidelines that can be used by practitioners to ease the process of breaking bad news to people with intellectual disabilities. The guidelines, which are adaptable to individual communication ability and level of understanding, address the many complex needs of people with intellectual disabilities who can find understanding and accepting news that has a negative impact on their life a very difficult task. In the book, Irene Tuffrey-Wijne covers a range of different types of bad news, from bereavement and illness to more minor issues such as a change of accommodation, and offers highly practical and effective tips that will help carers and practitioners ensure that bad news is relayed as sensitively and successfully as possible. An easy-to-use and comprehensive guide, this book will be an invaluable resource of information for carers, health professionals such as doctors and nurses as well as families of people with intellectual disabilities.

Intellectual Disability and Dementia

by Karen Watchman

Author	: Karen Watchman
Publisher	: Jessica Kingsley Publishers
Total Pages	: 338
Release	: 2014-05-21
Genre	: Medical
ISBN	: 0857007963

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Presenting the most up-to-date information available about dementia and intellectual disabilities, this book brings together the latest international research and evidence-based practice, and describes clearly the relevance and implications for support and services Internationally renowned experts from the UK, Ireland, the USA, Canada, Australia and the Netherlands discuss good practice and the way forward in relation to assessment, diagnosis, interventions, staff knowledge and training, care pathways, service design, measuring outcomes and the experiences of individuals, families and carers. The wealth of information offered will inform support and services throughout the whole course of dementia, from diagnosis to end of life. Particular emphasis is placed on how intellectual disability and dementia services can work collaboratively to offer more effective, joined up support. Practitioners, managers and commissioners will find this to be an informative resource for developing person-centred provision for people with intellectual disabilities and dementia and their families. It will also be a key text for academics and students who wish to be up-to-date with the latest research and practice developments in this field.

End of Life and People with Intellectual and Developmental Disability

by Roger J. Stancliffe

Author	: Roger J. Stancliffe
Publisher	: Springer Nature
Total Pages	: 542
Release	: 2022-06-11
Genre	: Psychology
ISBN	: 3030986977

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This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics reflect everyday community, palliative care, hospice and disability services. The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive, evidence-supported responses that translate research to practice, together with practice examples and resources grounded in lived experience. The book is applicable to readers from the disability field, and mainstream health professionals who assist people with disability in emergency care, palliative care or end-of-life planning

Learning and Intellectual Disability Nursing Practice

by Kay Mafuba

Author	: Kay Mafuba
Publisher	: Taylor & Francis
Total Pages	: 313
Release	: 2023-03-30
Genre	: Medical
ISBN	: 1000849554

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This well-respected core text provides a comprehensive solid foundation for students of nursing and practitioners who care for and or support people with learning/intellectual disabilities in a range of health and social care settings and scenarios. This book addresses learning/intellectual disability nursing from various perspectives, including historical and contemporary practice, health promotion, interventions for good mental health, people with profound disabilities and complex needs, care across the lifespan, and forensics. This new edition has been comprehensively updated throughout and now includes two entirely new chapters. One covers liaison nursing, and the other explores the future for learning/intellectual disability nursing. The book includes numerous case studies and learning activities to support the reader, as well as remaining clinically relevant. Uniquely this text is linked and benchmarked to the Nursing and Midwifery Councils, UK – Future Nurse Standards of Proficiency and the Nursing and Midwifery Board of Ireland’s Competencies for nursing students. This text is essential reading for anyone studying learning/intellectual disabilities at undergraduate and post-graduate levels; it will also be a useful resource for the wider family of nursing, as well as health and social care professionals.

Choice, Preference, and Disability

by Roger J. Stancliffe

Author	: Roger J. Stancliffe
Publisher	: Springer Nature
Total Pages	: 375
Release	: 2020-04-17
Genre	: Psychology
ISBN	: 3030356833

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This book examines choice and preference in the lives of people with disability, focusing on people with intellectual and developmental disabilities. It provides an overview of choice and examines foundational concepts related to choice and preference, including self-determination and supported decision making. Chapters examine a range of critical service and policy issues, such as guardianship, individualized funding, the health care system, and the situation regarding choices for people with disability in international contexts. In addition, chapters explore issues ranging from the development of preference and choice in childhood to choices in older age and end of life matters. It provides in-depth analysis of particular choices faced at different points across the lifespan. The book concludes with implications for policy and practice. Topics featured in this book include: Supported decision making for adults with intellectual disabilities or acquired brain injury. The role of parents and families in the development of choice-making skills. Preference assessments for individuals who cannot tell us what they prefer. Employment opportunities for people with intellectual disabilities. Sexual and reproductive rights for people with intellectual disabilities. Disability and the choice to become a parent. Choice, Preference, and Disability is an essential resource for researchers, professors, clinicians, therapists, and other professionals as well as graduate students in the fields of developmental and positive psychology, rehabilitation, social work, special education, occupational, speech and language therapy, public health, and healthcare policy.

Preventing the Emotional Abuse and Neglect of People with Intellectual Disability

by Sally Robinson

Author	: Sally Robinson
Publisher	: Jessica Kingsley Publishers
Total Pages	: 226
Release	: 2013-06-28
Genre	: Family & Relationships
ISBN	: 0857004727

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There's so many different types of abuse, and it all comes down to the same thing. It's making people nothing. And Fran was nothing. There was never anything nice said about her, everything was negative. And she had to put up with that, and we had to put up with that, until we all sort of believed it, almost.' Preventing the Emotional Abuse and Neglect of People with Intellectual Disability throws light onto the traumatic experiences faced by people with intellectual disability living in disability accommodation services. Through the narratives of nine people with intellectual disability and their family members, it reveals: the problem of systematic abuse; the cumulative impact of emotional and psychological abuse and neglect over time; recognition of the abuse by people with intellectual disability; and the lack of moral authority afforded to them in abuse acknowledgement and reporting. The author suggests a number of positive approaches and methods to help all those working with people with intellectual disability to prevent emotional abuse, respond appropriately and effectively support the recovery of victims. This book will prove to be indispensable for social care workers, care home managers, social workers, researchers and academics in the disability field, social sciences students, human rights workers and abuse practitioners.

Cancer and Cancer Care

by Debbie Wyatt

Author	: Debbie Wyatt
Publisher	: SAGE
Total Pages	: 641
Release	: 2014-11-30
Genre	: Health & Fitness
ISBN	: 1473927374

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‘This book creates new ground for all health professionals working in cancer care to read, enjoy, look at and question their practice.’ Caroline Adcock, Clinical Practice Educator – Haematology and Oncology, Royal Shrewsbury Hospital Cancer and Cancer Care is a complete study of cancer, the care of people with the disease and its impact on everyday life. Addressing the physical and psychosocial aspects of the illness in detail, it covers all fundamental aspects of cancer diagnosis, treatment, survival and aspects of psychosocial support for all those affected by cancer: patients, their families, and their healthcare providers. Chapters include: - A review of the latest theory and evidence on over 30 separate topic areas - Reflective questions which challenge readers to reappraise what they have learned - Chapter overviews and chapter summaries which highlight the key points The book is essential reading for all those on cancer care courses at undergraduate and postgraduate level. It will be valuable reading for nurses, oncologists, psychologists, social workers and all healthcare practitioners and researchers working with people affected by cancer.

Understanding and Working with People with Learning Disabilities who Self-injure

by Pauline Heslop

Author	: Pauline Heslop
Publisher	: Jessica Kingsley Publishers
Total Pages	: 162
Release	: 2012-11-15
Genre	: Psychology
ISBN	: 0857004433

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Adopting a predominantly psychological approach, this book provides carers with up-to-date information and resources to provide appropriately individualised care to people with learning disabilities who self-injure. Understanding and Working with People with Learning Disabilities who Self-Injure synthesises traditional (behavioural) and newer (psychological) approaches to understanding self-injury, drawing on psychoanalytic and social theory to provide practical guidelines for more sustained and effective support. It suggests that motivations for self-injury may be similar for people with and without learning disabilities, and draws on case work examples to suggest person-centred techniques that encourage communication – particularly important with people who do not use verbal communication - and recovery. The book covers a range of specific needs, including people with autism who self-injure, and emphasises the views of people with learning disabilities themselves and their families about what has worked best, and why. At the end of each chapter, a variety of practical implications for the provision of support are given. This book is for those supporting people with learning disabilities who self-injure and will be a useful resource for social workers, psychologists, counsellors, learning support workers, nurses and social and health care students.

How To Break Bad News

by Robert Buckman

Author	: Robert Buckman
Publisher	: University of Toronto Press
Total Pages	: 268
Release	: 1992-08-08
Genre	: Medical
ISBN	: 1487592639

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For many health care professionals and social service providers, the hardest part of the job is breaking bad news. The news may be about a condition that is life-threatening (such as cancer or AIDS), disabling (such as multiple sclerosis or rheumatoid arthritis), or embarrassing (such as genital herpes). To date medical education has done little to train practitioners in coping with such situations. With this guide Robert Buckman and Yvonne Kason provide help. Using plain, intelligible language they outline the basic principles of breaking bad new and present a technique, or protocol, that can be easily learned. It draws on listening and interviewing skills that consider such factors as how much the patient knows and/or wants to know; how to identify the patient's agenda and understanding, and how to respond to his or her feelings about the information. They also discuss reactions of family and friends and of other members of the health care team. Based on Buckman's award-winning training videos and Kason's courses on interviewing skills for medical students, this volume is an indispensable aid for doctors, nurses, psychotherapists, social workers, and all those in related fields.