The Alzheimer’S Diary

The Alzheimer’S Diary
Author: Joan Sutton
Publisher: iUniverse
Total Pages: 140
Release: 2014-05-05
Genre: Family & Relationships
ISBN: 149173163X

One who Forgets and One who is Forgotten One in eight over the age of sixty-five and one in three over the age of eighty will be diagnosed with Alzheimers Disease. In her memoir, author Joan Sutton narrates a moving account of her years as caregiver to her husband, noting that Alzheimers is a disease of the brain that is paid for with the currency of the heart. A member of the board of overseers of The Alzheimers Drug Discovery Foundation, she stresses the need to develop more effective treatment for the five million Americans currently diagnosed with this incurable disease, pointing out that for every patient there is a large circle of others also affected. Sutton offers practical advice for the care of the caregiver and the patient, and shares the pain that came as she watched pieces of her husbands self disappear. Following his death, after what Nancy Reagan described as the long goodbye, she writes candidly about coping with her new status as a widow and the aching loneliness of the heart that is the price paid for having known a great love. 100% of the authors royalties (20 to 40% of the purchase price) will benefit the Alzheimers Drug Discovery Foundation/Canada. Cover design by John R. Lewis

Remembering the Music, Forgetting the Words

Remembering the Music, Forgetting the Words
Author: Kate Whouley
Publisher: Beacon Press
Total Pages: 241
Release: 2011-09-06
Genre: Health & Fitness
ISBN: 0807003204

From the author of the much-loved memoir Cottage for Sale, Must Be Moved comes an engaging and inspiring account of a daughter who must face her mother’s premature decline. In Remembering the Music, Forgetting the Words, Kate Whouley strips away the romantic veneer of mother-daughter love to bare the toothed and tough reality of caring for a parent who is slowly losing her mind. Yet, this is not a dark or dour look at the demon of Alzheimer’s. Whouley shares the trying, the tender, and the sometimes hilarious moments in meeting the challenge also known as Mom. As her mother, Anne, falls into forgetting, Kate remembers for her. In Anne we meet a strong-minded, accidental feminist with a weakness for unreliable men. The first woman to apply for—and win—a department-head position in her school system, Anne was an innovative educator who poured her passion into her work. House-proud too, she made certain her Hummel figurines were dusted and arranged just so. But as her memory falters, so does her housekeeping. Surrounded by stacks of dirty dishes, piles of laundry, and months of unopened mail, Anne needs Kate’s help—but she doesn’t want to relinquish her hard-won independence any more than she wants to give up smoking. Time and time again, Kate must balance Anne’s often nonsensical demands with what she believes are the best decisions for her mother’s comfort and safety. This is familiar territory for anyone who has had to help a loved one in decline, but Kate finds new and different ways to approach her mother and her forgetting. Shuddering under the weight of accumulating bills and her mother’s frustrating, circular arguments, Kate realizes she must push past difficult family history to find compassion, empathy, and good humor. When the memories, the names, and then the words begin to fade, it is the music that matters most to Kate’s mother. Holding hands after a concert, a flute case slung over Kate’s shoulder, and a shared joke between them, their relationship is healed—even in the face of a dreaded and deadly diagnosis. “Memory,” Kate Whouley writes, “is overrated.”

Remember Joan an Alzheimer's Story

Remember Joan an Alzheimer's Story
Author: Candace Minor Comstock
Publisher:
Total Pages: 0
Release: 2011-08-07
Genre: Alzheimer's disease
ISBN: 9781463730819

"Throughout the book, Comstock returns to the theme of community, giving credit and gratitude to the friends and family members who helped with her mom's care and supported Comstock through the process, and these are among the memoir's strongest moments... [It is] an affectionate portrait of a damaged but enduring family that has suffered a profound loss but continues to adapt, survive and move forward." --Kirkus Reviews Remember Joan is the account of a daughter beside her mother as they face a life disrupted by Alzheimer's disease. The book opens with a wedding and closes with a funeral. Embedded between these two ceremonial rituals are two tales, a story of the mother's decline and death due to Alzheimer's and a story of the author's relationships and life as the daughter of Joan. Humor is the family's favorite coping strategy when damage control is necessary. In the end, this book is not only a tribute to Joan's life, but a tribute to all who try to create a celebrated life with the people that surround them.

The Problem of Alzheimer's

The Problem of Alzheimer's
Author: Jason Karlawish
Publisher: St. Martin's Press
Total Pages: 269
Release: 2021-02-23
Genre: Health & Fitness
ISBN: 1250218748

A definitive and compelling book on one of today's most prevalent illnesses. In 2020, an estimated 5.8 million Americans had Alzheimer’s, and more than half a million died because of the disease and its devastating complications. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2050. Part case studies, part meditation on the past, present and future of the disease, The Problem of Alzheimer's traces Alzheimer’s from its beginnings to its recognition as a crisis. While it is an unambiguous account of decades of missed opportunities and our health care systems’ failures to take action, it tells the story of the biomedical breakthroughs that may allow Alzheimer’s to finally be prevented and treated by medicine and also presents an argument for how we can live with dementia: the ways patients can reclaim their autonomy and redefine their sense of self, how families can support their loved ones, and the innovative reforms we can make as a society that would give caregivers and patients better quality of life. Rich in science, history, and characters, The Problem of Alzheimer's takes us inside laboratories, patients' homes, caregivers’ support groups, progressive care communities, and Jason Karlawish's own practice at the Penn Memory Center.

In Love

In Love
Author: Amy Bloom
Publisher: Random House
Total Pages: 241
Release: 2022-03-08
Genre: Biography & Autobiography
ISBN: 0593243943

NEW YORK TIMES BESTSELLER • A powerful memoir of a love that leads two people to find a courageous way to part—and a woman’s struggle to go forward in the face of loss—that “enriches the reader’s life with urgency and gratitude” (The Washington Post) “A pleasure to read . . . Rarely has a memoir about death been so full of life. . . . Bloom has a talent for mixing the prosaic and profound, the slapstick and the serious.”—USA Today ONE OF THE BEST BOOKS OF THE YEAR: NPR Amy Bloom began to notice changes in her husband, Brian: He retired early from a new job he loved; he withdrew from close friendships; he talked mostly about the past. Suddenly, it seemed there was a glass wall between them, and their long walks and talks stopped. Their world was altered forever when an MRI confirmed what they could no longer ignore: Brian had Alzheimer’s disease. Forced to confront the truth of the diagnosis and its impact on the future he had envisioned, Brian was determined to die on his feet, not live on his knees. Supporting each other in their last journey together, Brian and Amy made the unimaginably difficult and painful decision to go to Dignitas, an organization based in Switzerland that empowers a person to end their own life with dignity and peace. In this heartbreaking and surprising memoir, Bloom sheds light on a part of life we so often shy away from discussing—its ending. Written in Bloom’s captivating, insightful voice and with her trademark wit and candor, In Love is an unforgettable portrait of a beautiful marriage, and a boundary-defying love.

Through the Seasons

Through the Seasons
Author: Cynthia R. Green
Publisher: JHU Press
Total Pages: 159
Release: 2020-03-10
Genre: Health & Fitness
ISBN: 1421436485

A collection of easy-to-follow activities, organized by seasons of the year, to help family members and caregivers engage with memory-challenged adults. Dementia and related disorders impact the lives of those affected in countless ways, making it difficult to remain independent at work, at home, and in the wider world. But recent studies have shown that structured activities can make a significant, positive difference by stimulating mental engagement while improving interactions between caregivers and memory-challenged adults. Fun and easy to use, this large-format, full-color picture book is divided into themes representing the four seasons. Each section describes several multisensory experiences—such as walking on the beach, making ice cream, or planting flowers—along with related topics for discussion and activities to elicit memories and encourage new positive associations. The topics and activities incorporate all five senses to facilitate connections and conversations. The book adopts a compassionate, person-centered approach and is designed so that two people can easily look together while sitting side by side. This latest edition, which has been thoroughly revised, • takes a multicultural approach • includes all-new images, as well as 14 completely new highlighted activities • integrates modern wellness concepts • features a new introduction and an updated resource section • offers guidance about activity planning and optimizing interactions between care partners and the individual with dementia Helping you and your loved one make cherished new memories, Through the Seasons is an indispensable solution to the question of what to do together to maintain well-being and connection.

Finding Grace in the Face of Dementia

Finding Grace in the Face of Dementia
Author: John Dunlop, MD
Publisher: Crossway
Total Pages: 194
Release: 2017-07-14
Genre: Religion
ISBN: 1433552124

There Is Hope . . . When a patient is diagnosed with dementia, it impacts not only the patient but also those who care for them. It can be devastating to watch loved ones lose the independence, personality, and abilities that once defined them, knowing there is no cure. How should Christians respond to a diagnosis of dementia? Experienced geriatrician Dr. John Dunlop wants to transform the way we view dementia—showing us how God can be honored through such a tragedy as we respect the inherent dignity of all humans made in the image of God. Sharing stories from decades of experience with dementia patients, Dunlop provides readers, particularly caregivers, with a biblical lens through which to understand the experience and challenge of this life-altering disease. Finding Grace in the Face of Dementia will help you see God's purposes as you love and care for those with dementia.

The Story of Forgetting

The Story of Forgetting
Author: Stefan Merrill Block
Publisher: Random House
Total Pages: 322
Release: 2008-04-01
Genre: Fiction
ISBN: 1588366855

In Stefan Merrill Block’s extraordinary debut, three narratives intertwine to create a story that is by turns funny, smart, introspective, and revelatory. Abel Haggard is an elderly hunchback who haunts the remnants of his family’s farm in the encroaching shadow of the Dallas suburbs, adrift in recollections of those he loved and lost long ago. As a young man, he believed himself to be “the one person too many”; now he is all that remains. Hundreds of miles to the south, in Austin, Seth Waller is a teenage “Master of Nothingness”–a prime specimen of that gangly, pimple-rashed, too-smart breed of adolescent that vanishes in a puff of sarcasm at the slightest threat of human contact. When his mother is diagnosed with a rare form of early-onset Alzheimer’s, Seth sets out on a quest to find her lost relatives and to conduct an “empirical investigation” that will uncover the truth of her genetic history. Though neither knows of the other’s existence, Abel and Seth are linked by a dual legacy: the disease that destroys the memories of those they love, and the story of Isidora–an edenic fantasy world free from the sorrows of remembrance, a land without memory where nothing is ever possessed, so nothing can be lost. Through the fusion of myth, science, and storytelling, this novel offers a dazzling illumination of the hard-learned truth that only through the loss of what we consider precious can we understand the value of what remains.

Remember

Remember
Author: Lisa Genova
Publisher: Atlantic Books
Total Pages: 187
Release: 2021-09-02
Genre: Health & Fitness
ISBN: 1838954163

*A New York Times bestseller* 'Using her expertise as a neuroscientist and her gifts as a storyteller, Lisa Genova explains the nuances of human memory' - Steven Pinker, Johnstone Professor of Psychology, Harvard University, and bestselling author of How The Mind Works 'No one writes more brilliantly about the connections between the brain, the mind, and the heart. Remember is a beautiful, fascinating, and important book about the mysteries of human memory - what it is, how it works, and what happens when it is stolen from us. A scientific and literary treat that you will not soon forget.' - Daniel Gilbert ( New York Times bestselling author of Stumbling on Happiness) Have you ever felt a crushing wave of panic when you can't for the life of you remember the name of that actor in the movie you saw last week, or you walk into a room only to forget why you went there in the first place? If you're over forty, you're probably not laughing. You might even be worried that these lapses in memory could be an early sign of Alzheimer's or dementia. In reality, for the vast majority of us, these examples of forgetting are completely normal. Why? Because while memory is amazing, it is far from perfect. Our brains aren't designed to remember every name we hear, plan we make or day we experience. Just because your memory sometimes fails doesn't mean it's broken or succumbing to disease. Forgetting is actually part of being human. In Remember, neuroscientist and acclaimed novelist Lisa Genova delves into how memories are made and how we retrieve them. In explaining whether forgotten memories are temporarily inaccessible or erased forever and why some memories are built to exist for only a few seconds while others can last a lifetime, we're shown the clear distinction between normal forgetting (where you parked your car) and forgetting due to Alzheimer's (that you own a car). Remember shows us how to create a better relationship with our memory - so we no longer have to fear it any more, which can be life-changing.