The Trifecta Passport: Tools for Mast Cell Activation Syndrome, Postural Orthostatic Tachycardia Syndrome and Ehlers-Danlos Syndrome

The Trifecta Passport: Tools for Mast Cell Activation Syndrome, Postural Orthostatic Tachycardia Syndrome and Ehlers-Danlos Syndrome
Author: Amber Walker
Publisher: Amber Walker
Total Pages: 503
Release: 2021-01-27
Genre: Body, Mind & Spirit
ISBN: 1733711732

The “trifecta” refers to three conditions that commonly occur together: mast cell activation syndrome (MCAS), postural orthostatic tachycardia syndrome (POTS) and the hypermobile type of Ehlers-Danlos syndrome (hEDS). These three conditions are gradually becoming more recognized in the mainstream medical world as more and more patients find themselves struggling with debilitating and often mysterious symptoms. However, recognizing these conditions is only the first step on the healing journey. With the right approach and toolbox, patients can reverse many of these symptoms to find lasting vitality. Written by a Doctor of Physical Therapy who has additional certifications in functional medicine and nutrition and extensive experience in working with these conditions, this book serves as patient guide that empowers individuals to put all of the puzzle pieces together as part of an individualized healing plan. Part One (3 chapters) is an overview of the three trifecta conditions, and Part Two (9 chapters) outlines the important pillars of an essential plan to address any (or all) of these conditions holistically. The book wraps up with a chapter of patient case stories. Accompanying the purchase of this book is access to a free 20-page PDF document that serves as a customizable workbook for readers to use as they read along. The Trifecta Passport dives into topics such as nervous system regulation, mold and other biotoxins, nutrition, exercise, detoxification, mental/emotional health and trauma, structural/musculoskeletal issues and the many underlying root issues (related to hormones, bacterial/viral load, gut health, etc.) that can trigger or exacerbate these conditions. This resource unpacks many different tools and practical treatment options that should be on the radar of patients living with these (and other) chronic conditions. When faced with these labels, it can be overwhelming to weed through all the resources out there to figure out how to move forward with a comprehensive and personalized road map. By helping readers put it all together in an organized manner, this book is a great resource for any patient with chronic illness as well as the caregivers and doctors who support them.

Mast Cells United: A Holistic Approach to Mast Cell Activation Syndrome

Mast Cells United: A Holistic Approach to Mast Cell Activation Syndrome
Author: Amber Walker
Publisher: Amber Walker
Total Pages: 542
Release: 2019-03-16
Genre: Medical
ISBN: 1733711716

At 542 pages and referencing over 1200 academic articles, this book is the longest and most thorough resource on mast cell activation syndrome (MCAS) to date. Allergies and anaphylaxis are on the rise, alongside gastrointestinal problems, skin issues, fatigue, orthopedic pain, neurological symptoms, and just about everything in between. Patients are coming out of the woodwork with chronic, debilitating, often invisible illness. Recent research estimates that 14%-17% of the population may have mast cell activation disease. Much of the medical community has never heard of the condition, and existing mainstream treatment tends to focus predominantly on pharmacological management. However, once a patient has reached a stable baseline, there are a number of other individualized approaches that can guide patients to successfully address the underlying root issues. This book includes: 1) an in-depth overview of mast cell activation disease, with a focus on mast cell activation syndrome (MCAS); 2) a patient story describing life with MCAS; 3) a detailed literature review and current hypotheses for disease origins; 4) a practical guide of clinical considerations for diagnosis; 5) a chapter devoted to comorbid conditions, including Ehlers-Danlos syndrome, POTS, Lyme disease and much more; 6) several chapters devoted to mainstream and natural treatment options, dietary considerations, and strategies for holistic healing; 7) content from dozens of interviews with prominent MCAS experts, including specialists in allergy/immunology, hematology, functional medicine, naturopathy, psychology, nutrition, gastroenterology, physical therapy, clinical research, and more! Whether a patient, medical practitioner, or family member/friend, this book empowers readers and provides patients with concrete steps to move forward in the diagnosis and comprehensive treatment of mast cell activation syndrome.

Chinese Medicine and the Management of Hypermobile Ehlers-Danlos Syndrome

Chinese Medicine and the Management of Hypermobile Ehlers-Danlos Syndrome
Author: Paula Bruno
Publisher: Singing Dragon
Total Pages: 290
Release: 2023-09-21
Genre: Medical
ISBN: 1839974990

Hypermobility syndromes are more common, complex and varied than most practitioners realise. Every hypermobile patient is unique, and therefore challenging to treat using a pre-set paradigm or protocol. The hEDS population can be underserved by Western medicine and there is much that Chinese medicine can do for this community. This book is one of the first of its kind - a Chinese Medicine text focusing specifically on hypermobile Ehlers-Danlos Syndrome. Presenting existing bio-medical narratives before providing an in-depth exploration of the Chinese Medicine paradigms, this guide gives an overview of comprehensive treatment scenarios and addresses issues faced by EDS patients including pain management, psycho-emotional challenges, disruption of gut health, and chronic inflammation, including post-Lyme syndrome.

Never Bet Against Occam

Never Bet Against Occam
Author: Lawrence B. Afrin
Publisher: Sisters Media, LLC
Total Pages: 480
Release: 2016
Genre: Mast cell disease
ISBN: 9780997319613

In 2008 Dr. Afrin started coming to understand that a newly recognized type of mast cell disease, now called mast cell activation syndrome (MCAS), was the underlying diagnosis in many patients he was seeing who were each suffering large assortments -- quite different from one patient to the next -- of chronic multisystem inflammatory illnesses of unclear cause. Dr. Afrin soon gained experience that MCAS is far more prevalent than the only mast cell disease previously known to medicine (the rare disease of mastocytosis) and that most MCAS patients, once accurately diagnosed, can eventually find significantly helpful medications targeted at the disease. The frequency and magnitude of the improvements Dr. Afrin has seen -- even the relief that comes from finally having a unifying diagnosis other than "psychosomatism" -- have spurred him to focus in this area, not only tending to the needs of his patients but also pursuing research to advance our understanding of the disease and helping to educate other professionals who in turn can help even more of the many people who have long been suffering not only the symptoms of the disease but also the natural concern of not understanding why one would be so "unlucky" to have acquired so many medical problems. As it turns out, such patients are not so unlucky and truly have just one root issue (and a very common one at that), which has the biological capability to develop, directly or indirectly, into most or all of their previously diagnosed problems. There is a great deal yet to learn about this, but even with just the present very limited understanding, the opportunity to diagnose and help patients with MCAS seems to be enormous and Dr. Afrin felt a description of the disease, written for the general public, might help lead some MCAS patients on a journey to diagnosis and improvement sooner rather than later. Dr. Afrin hopes this book will help people who might have, or do have, MCAS. A portion of the proceeds of purchases of this book will go to support research and education in this area.

A Dietary Connection for POTS, EDS and MCAS

A Dietary Connection for POTS, EDS and MCAS
Author: Lynne D M Noble
Publisher:
Total Pages: 108
Release: 2020-12-04
Genre:
ISBN:

Mast cell activation syndrome, postural orthostatic tachycardia syndrome and Ehlers Danlos syndrome are three syndromes which often appear together. On the surface they appear to be very different. After all, what can multiple allergies have to do with a fast heartbeat and a tendency to faint and how does it fit in with a debilitating connective tissue disorder? If there is a connection is there just one specific association or are there a number of different causes which come together to cement this eternal triangle? The impact of these syndromes on lives is profound not only in terms of lost working hours but of pain and restrictions which would test the patience and strength of most people. But are these syndromes a lifelong companion? Can diet influence genetic inheritance so that the propensity towards certain conditions is turned off. Maybe though, the answer is simpler than that. Could a deficiency of nutritional substances account for all of these syndromes by changing an outcome which has a knock on effect on the way the body responds downstream. All these questions are answered and more and accompanied by photos showing the impact of some of the symptoms of MCAS.The author, a medical nutritionist, takes us on a fascinating journey as she shows how simple deficiencies can account for all the syndromes occurring together and more importantly how easily they can be addressed. This is a book that can be read alone or complements other books in this series especially EDS and the Hypermobility Syndrome Diet which investigates the causes of hypermobility EDS and how diet may impact its manifestation. .

The Pain-Free Mindset

The Pain-Free Mindset
Author: Dr Deepak Ravindran
Publisher: Random House
Total Pages: 195
Release: 2021-03-04
Genre: Health & Fitness
ISBN: 1473581451

If you know anyone who works in the NHS. A nurse, doctor, physio, dietitian, administrator, manager, literally anyone. Gift them this book. Dr Rupy Aujla This book is an absolute must have for anyone who wants to take back control of their lives - and most importantly - their pain. Kate Silverton There is no easy fix when it comes to chronic pain. Opioids are often the first, addictive resort and surgery rarely achieves the pain free outcome promised. But while there is no single fix, there is a way out and it starts with your mindset. This is the powerful approach of The Pain-Free Mindset, where NHS pain consultant Dr Ravindran brings his 20 years of experience to offer you an effective set of techniques that will help you take back control and overcome your pain. In this groundbreaking guide you will: ·Discover what happens to your body and brain when you experience pain ·Learn how you can change the way you perceive and respond to pain - without taking addictive medication ·Find the best pain-management plan for you and your lifestyle Packed with science-backed tips and inspiring case studies this book will transform your mindset and show that you have the power to live pain free.

A Multidisciplinary Approach to Managing Ehlers-Danlos (Type III) - Hypermobility Syndrome

A Multidisciplinary Approach to Managing Ehlers-Danlos (Type III) - Hypermobility Syndrome
Author: Isobel Knight
Publisher: Singing Dragon
Total Pages: 364
Release: 2013-03-28
Genre: Health & Fitness
ISBN: 0857010557

The complex effects of Ehlers-Danlos Syndrome (Type 3, Hypermobility), or EDSIII, on a patient's physical and mental wellbeing are extremely challenging for everyone involved, requiring a multidisciplinary care team and enormous dedication from the patient. This book presents an overview of what it means to be a chronic complex patient, examining the wide range of physiological and psychological implications associated with EDSIII and other conditions such as endometriosis and fibromyalgia. It explores the exercise and rehabilitation work involved in managing the condition effectively, considering a diverse range of medical treatments and complementary approaches including physiotherapy, Bowen Technique and Feldenkrais Method(R). There are contributions and insights throughout from experts in the fields of physiotherapy, rheumatology and health psychology, all of whom have extensive experience of working with complex chronic patients. The author links her own symptoms and experiences to those of other EDSIII patients and discusses how she has been able to reach a point where she can successfully manage the condition. This book will be essential reading for professionals working with EDSIII and other complex conditions including medical professionals, physiotherapists, occupational therapists, psychologists, counsellors and complementary therapists, and will be of interest to patients with EDSIII wanting to learn more about effective management of the condition.

Munchausen Syndrome by Proxy

Munchausen Syndrome by Proxy
Author: Alex V. Levin
Publisher: Jossey-Bass
Total Pages: 504
Release: 1995
Genre: Medical
ISBN:

Munchausen Syndrome by Proxy is the deliberate creation or false reporting of illness in a child by a caretaker for the mere purpose of attracting attention. The authors examine the causes, manifestations and consequences of this little known and sometimes deadly form of child abuse. It is invaluable reading for psychiatrists, pediatricians, social workers, psychologists, child death investigators, and anyone working with chronically ill children.

A Guide to Living with Hypermobility Syndrome

A Guide to Living with Hypermobility Syndrome
Author: Isobel Knight
Publisher: Singing Dragon
Total Pages: 242
Release: 2011
Genre: Health & Fitness
ISBN: 1848190689

People with Hypermobility Syndrome (HMS), including Ehlers-Danlos type Hypermobility Syndrome, have a larger range of joint movement than is typical, which can cause pain and fatigue despite an outward appearance of good health. This book is the complete guide to living with and managing HMS, and ultimately enjoying a fulfilling life. The book covers everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis and managing its negative effects. The author, who has HMS herself, looks at how the condition affects children and adolescents, before moving on to explore pain management (including the use of physiotherapy, pilates and a selected range of complementary health therapies), pregnancy, physical and psychological aspects of the condition, and how it widely affects dancers and other performance artists. Wider conditions that encompass Hypermobility Syndrome are also touched upon, including Fibromyalgia and IBS. This book will be a must for anybody who suffers, or suspects they might be suffering from, Hypermobility Syndrome. It will also be of interest to their families and friends, and professionals working with the condition.